Hello and Welcome to Neurotalk! I am so very sorry to hear that you have RSD and hope and pray that you find something that will help you and ease your symptoms real soon!

I have RSD in my left leg and right arm, I developed it in March 2007 when I was 12 years old after falling down some steps and spraining my left ankle. It took me nearly 5 months to get an accurate diagnosis and I was later put on some medications that unfortunately caused my RSD to spread!

The good thing for you is that you were diagnosed really quickly. Treating RSD quickly is SO important whilst dealing with RSD and my Pain Management Doctor told me that the best chance of reaching remission is if your RSD is caught within the first 3 months as that is when the pain is "Sympathetically Maintained". After 3 months, the RSD goes to being "Independantely Maintained" which means that treating it is harder.

You are doing the right thing by touching your leg. I know it is really painful and you probably don't want to do it but that is one of the most important things you can do!! For the first few months, I didn't touch my foot at all because it hurt too much and I couldn't tolerate the pain and the allodynia spread quite a lot!! It took me about 6 months to try and learn to touch my leg and even then I didn't want to do it but I now realise that I NEED to do it in order to try and get me better.

If you have any questions, please don't hesitate to ask me - I am more than happy to help you if I can and I know how hard and lonely it can get at times dealing with this awful disease.

I really hope you find something that helps relieve your symptoms soon and I am keeping you in my thoughts.

Love, Alison.