Thread: Accepting TN
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Old 01-01-2009, 03:55 PM
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dmplaura dmplaura is offline
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Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Marylynn sorry you've been feeling such pain. It's truly horrendous.

It was actually a dental specialist who diagnosed my Trigeminal Neuralgia, but didn't specify if it was type 1 or 2 (2 being atypical). I've experienced both types to varying degrees.

I've tried many drugs.. Amitriptyline and another anti depressant (can't recall the name right now) did nothing. Anti convulsants: Carbamazepine, Neurontin, Topiramate, all failed (side effects and little to no benefits from these).

The only drug that has worked, and which I continue to take, is Clonazepam. 1mg a day currently. At some times, I can take as little as .5 mg and have relief.

My pain experience has been more on the side of burning searing pain that's continuous from about 30 minutes after waking, rather than the stabbing shock like pains (however, I have had these as well).

I hope you find your best option for pain relief. It's a lot of playing guinea pig on the part of the patient, unfortunately .
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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