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Member
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Join Date: Jan 2008
Location: Kansas
Posts: 971
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Member
Join Date: Jan 2008
Location: Kansas
Posts: 971
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I met one person w/ MS online personally. Although she lives in CA, and I live in KS, her parents live just 30 minutes from me, and we've managed to get together twice.
Once, she also invited someone she knew who lived close by who also had MS. Turned out that we had met several years before at a church camp, and that she (from KS) had been in voluntary service in Mississippi with my mother (who was from Canada) in 1959-1960. How cool. Small world, sometimes.
But, mostly, I don't know people with MS.
I've been very out of the closet with my MS, mostly because my symptoms and flares are so huge that it would not be possible to hide it in our community.
Wish I knew more people with MS. Contacted the Wichita NMSS in October regarding a support group in my community. Would be willing to help, but not be in charge. She said that there was someone else from our area interested in getting a group started. She was thinking maybe Feb. (Why Feb? I don't know what was wrong with October.) If I don't hear from NMSS by then, I'll probably contact her again. The director of that chapter strikes me as a totally friendly people person, but not very organized.
~ Faith
~ Faith
__________________
aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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