Quote:
Originally Posted by avanliew
I really enjoyed your response. It puts into writing all the frustration that i have experienced this past year. I went from being a work horse that did remodled my own house and was starting on a new one, to a person that is worn out just by brushing my hair. I can no longer drive due to the dizziness and I only manage to make it to work, one or two days a week. The rest of the week is spent laying in bed wishing that i could find somebody that doesn't think i am nuts.
My current neurologist says that because MRI shows no lesions and my spinal tap doesn't show abnormal protiens that I do not have MS. He says that I have fybromailgia (to explain the muscle fatigue and pain), narcolepsy (to explain the numbness), and some sort of heart problem ( to explain dizziness).
I am so frustrated. There is only so long that employer will continue to pay my salary with out me being there. I have 4 daughters that I have always raised on my own. I have had to move in with my mother and step-father in order to survive. I sure wish there was some way for the doctors to be able to detect MS earlier. Thanks for listening to my rambling!
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My 1st brain MRI showed lesions in the periventricular area - that was jan '03.
I am still in limbo. Why? Because all the other tests have been inconclusive, except the ones that show other possible causes for a few of my symptoms, so I'm dx'd with 3 other things. (neck injury, syringomyelia, FM)
I used to be like you too, working full time, raising kids, remodeling a house plus a zillion other things. Now I'm too tired to leave the house and even my shadow hurts.
I totally agree more funding should go toward finding a way to detect ms earlier. Current diagnostics are like something from the stone age.
Q to both Avanliew and Dixie - are you at least getting some help for your symptoms? I hope so.