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Old 01-03-2009, 10:17 AM
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Join Date: Jan 2008
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braingonebad braingonebad is offline
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Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
15 yr Member
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Quote:
Originally Posted by avanliew View Post
I really enjoyed your response. It puts into writing all the frustration that i have experienced this past year. I went from being a work horse that did remodled my own house and was starting on a new one, to a person that is worn out just by brushing my hair. I can no longer drive due to the dizziness and I only manage to make it to work, one or two days a week. The rest of the week is spent laying in bed wishing that i could find somebody that doesn't think i am nuts.

My current neurologist says that because MRI shows no lesions and my spinal tap doesn't show abnormal protiens that I do not have MS. He says that I have fybromailgia (to explain the muscle fatigue and pain), narcolepsy (to explain the numbness), and some sort of heart problem ( to explain dizziness).

I am so frustrated. There is only so long that employer will continue to pay my salary with out me being there. I have 4 daughters that I have always raised on my own. I have had to move in with my mother and step-father in order to survive. I sure wish there was some way for the doctors to be able to detect MS earlier. Thanks for listening to my rambling!

My 1st brain MRI showed lesions in the periventricular area - that was jan '03.

I am still in limbo. Why? Because all the other tests have been inconclusive, except the ones that show other possible causes for a few of my symptoms, so I'm dx'd with 3 other things. (neck injury, syringomyelia, FM)

I used to be like you too, working full time, raising kids, remodeling a house plus a zillion other things. Now I'm too tired to leave the house and even my shadow hurts.



I totally agree more funding should go toward finding a way to detect ms earlier. Current diagnostics are like something from the stone age.

Q to both Avanliew and Dixie - are you at least getting some help for your symptoms? I hope so.

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