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Member
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Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
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Member
Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
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I have not been over here in ages, but did a google search trying to find some info and this site came up-
My daughter Riley is 9, she has CMT, and my google was because of her CMT progression.
I am not sure about trauma, was she already progressing prior to the accident? We have found that Riley has progressed and it isn't until something happens that we look back and have an "ah ha" moment. I am afraid we are in the midst of that right now.
How is your daughter affected? Is her respiratory system affected at all?
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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