I absolutely agree with "Mom"-it's very hard to talk with family members about how things feel unless they do a little digging to see what RSD actually feels like. It is such a strange malady to have and unless you are aware that things like opening/closing a door or leaving a window open can cause true pain, it's hard to relate to. The best thing that you can do is advocate for the people around her to be familiar with her personal triggers and to take the pain of RSD seriously. Like the fibro, the good day/bad day premise is something you understand, but I have to say that the constant-ness of the pain is maddening. Being her advocate and familiarizing yourself with her RSD can bring her more comfort than you know. Thank you for being such a loving sister and supporting her through her struggle with RSD.
Lori Lee