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Old 01-04-2009, 04:07 PM
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
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Quote:
Originally Posted by ali12 View Post
Thank you for posting the pictures - I can see them just fine also!

Your leg looks sooo much like mine with the swelling and colour changes however my foot is rotated out to the side due to a condition called 'Dystonia' which is thought to be a complication of the RSD. The swelling in my case didn't start straight away but all of the other symptoms started immediately ... it took about 16 weeks for the swelling to appear and it hasn't gone down in over a year unfortunately. When my leg first swelt up, my doctor thought it was a blood clot so sent me for an emergency scan - thankfully it turned out to "just" be RSD but it REALLY scared me and my mum!!

I hope you find something that works for you soon and please know that I am thinking of you and if you need anything, I am here for you!
Oh dear.....so you've had your swelling for a year??? I am so sorry you've got dystonia as well. I try so hard to keep moving my ankle around to maintain flexibility. Are you on any muscle relaxants??? I have been on them for over a year for another medical condition. I wonder if it hasn't helped keep my ankle pliable just having had it on board all this time???

The odd thing is that the color changes (for the most part) ONLY occur when I stand.....they are not present when I'm lying down. I'm hoping that is a good sign of this being a "mild" case. My foot still has the other symptoms (tingling, jabbing, electric shocks, getting hot) regardless of my position....it just only turns red when I stand (and stays that way the whole time I'm up......I can feel it and tell when it's getting worse). This disease is so mysterious......
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"Thanks for this!" says:
ali12 (01-04-2009)