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Originally Posted by MominPainRSD
Don't ya just love the good ole docs??? I went to Urgent care 3 days after the excruciating pain/color changes started (thinking I had a blood clot) because the darn surgeon who operated on me refused to see me. Even the Urgent Care doc (though he could see from my shaking and profuse sweating that I was in severe pain) said the color change was "normal". I wonder.....should I take some info on RSD by there for him to read??? Or perhaps to the doc that operated and diagnosed me (telling me at the same time that people that had this 50 years ago ended up in a "nut house") and then rushed out of the room in a hurry to see his next victim??? Ohhh, Momma's a bit bitter after all, eh???
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LOL No......you're so normal that if you were any more normal I'd question your sanity!
Yeah....I'm the same way so let's hear it for normal,bitter women! ROFL
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Ok......so no "mild case" denial for me......the color change when standing is par for the course. The severe burning pain isn't with me like it was in the beginning (THAT was bad......as severe as labor). Now it is more of a throbbing feeling of increasing pressure (and I can tell without even looking when it is turning bright purple). My theory is that the postural change was more pronounced in the beginning because I was elevating my leg (as they instructed.....six inches above my heart or greater) after the surgery and so the gradient was more. That could be why the severe burning pain isn't present anymore (that and I've quit icing it).
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ICE! YIKES!!!! I'm soooo happy to hear you've stopped that and I can almost guarantee it's why you had so much burning. I, just like everyone else, did what the doc told me and used ice because of the swelling. All it ever did after the rsd started was increase my pain level out of the stratosphere. You have that pressure feeling too?!?! I would say cool or awesome, but they would only be used in the context that Thank Goodness I'm not the only one who feels that after having my legs down for a little bit.
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The twitching has actually been with me for years even before RSD (have mentioned it to many docs.....no one cared)....has gotten worse (more of an occasional tremor or rapid twitch) since my diagnosis....especially in my left thigh. I accidentally bumped my hurt foot a few weeks ago and it twitched and flopped around for several minutes like a fish out of water. They switched me from Zanaflex to Flexeril about the same time. I only take it in the evening.....it makes me really sleepy.
Ok.....so the swelling may go away or not......I'll see when I get there. I do think I have some nerve damage from the surgery.....I have areas of my left foot where I have decreased sensation (especially on top of my ankle). I have to be really careful when I shave my legs to not cut myself there (and the allodynia is bad there too). Being in the shower always hurts and makes it swell.
Ok......I'm just rambling now.....everyone take care and have a pain-managed evening!!
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Getting an EMG would be the only sure fire way to find out for sure if there's any nerve damage in the foot or ankle. Of course that particular little test can really hurt some people. I've talked to enough people to have figured out that those with touch sensitivity usually HATE the emg. When I had mine done I was only sensitive to air so it wasn't as bad as I had feared. The doc that it, neuro, did it from my lower back, down both legs and feet. For about 3-4 days after I felt like I'd been stabbed repeatedly(which I had LOL), run over by a very huge semi many times and went a few rounds in the ring. I was sore....well more than that but close as I can come up a word.
Hugs,
Karen