Quote:
Originally Posted by dahlek
Go and read the sticky's/ important links...then click on any blue links and see if you can find things that are relevant. You mite be surprised?
I kind of hope and yet don't hope that the spinal results show signs of immune-ness. Why? Because treatment options are very limited and often require either an expensive long-term commitment or interesting [?] side effects.
I understand because I'd had a severe pneumonia in '02, then started PN in '03 and have had an immune PN since then...it was diagnosed in '04. Then treated, and still am. I was lucky?
It does sound tho, that your docs are really trying to get and be on top of it. Tho how they mite treat it is dependent upon their medical biases [training-indoctrinations] and your insurances. Sad but true facts of life these days. BUT, ANYTHING that gives any relief without drastic side effects? THAT is well worth it!
Read Learn Ask questions! Nothing is too silly to ask! Sometimes it's the silly things that are the keys. Hang in there, there are many here who understand!  's - j |
Thanks so much for your kind and informative reply! I spent a good part of last night and several hours today looking over the message board and links. I've certainly learned a lot. I've spent the last few years immersed in MS (ask me anything about it
) and am ready to explore other avenues.
I picked up my LP results and it looks to me like they were normal. I did notice that Obands were not ordered. I asked why they weren't ordered when I got to the hospital. I don't they were ever able to reach my doctor (it was the day after Christmas) to find out. I knew something wasn't right when they didn't draw my blood the same day (I've had one done before).
It's interesting that you also had an infection before you came down with the PN. What kind of PN do you have? How many doctors did you have to see before you got answers?
Yes, I am lucky that I finally found a neuro who is trying to help. I still wonder though if I should possibly be seeing a neuromuscular neurologist. I have seen a Rheumatologist off and on for several years because I have had a few auto immune markers show up in my blood. High ANA twice, high CRP once. But, they don't make much of it.
Well, I better go. Thanks again for your input.
