I know I don't have the same condition but I could have written the rest...I lock normal on outside except for the curve in my back that my son now calls me Mrs C and it hurts my feelings! I could maybe live for another 40 years but my condition is progressive and I will no doubt end up in a WC and I can't lift over 15 lbs, can't even open a bottle of pop.

A few months ago with my dead bowel I really thought I had colon cancer and finally my family started paying attention to me for first time in years and I had the colonoscopy and it was ruled out and confirmed it was just part of my condition and suddenly back to no one cares so I was actually sad I did not have colon cancer, how sick is that?


My Dr said to buy a book called " But you don't look Sick". I too was family caregiver and now that I am useless have been kicked to the curb. I don't know who I am anymore, just that I am now an orphan!

Sorry for butting in!