Thread: what can I do?
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Old 01-05-2009, 06:38 PM
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Edouin Edouin is offline
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Join Date: Jan 2007
Location: Fort Saskatchewan, Alberta, Canada
Posts: 6
15 yr Member
Edouin Edouin is offline
Junior Member
Edouin's Avatar
 
Join Date: Jan 2007
Location: Fort Saskatchewan, Alberta, Canada
Posts: 6
15 yr Member
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At the time of my Dx, I was in the Military, and fit as a fiddle. However, as the condition worsened, my fitness started to wane, and now I have put on almost 100 lbs due to inactivity. I use a cane to walk now, and between pain and depression, it is hard to find that second gear - aka -> Get up and go - feeling. I do feel however that my weight gain may be exacerbating the problem, and am trying to seek professional dietary assistance to help reduce my caloric intake.

I am taking Lyrica for my daily pain. Lyrica is a reformulation of Gabapentin (Neurontin), an anti-epileptic drug whose major side effect is nerve pain control. Lyrica is being marketed as a Nerve Pain Medication for this reason, however is not totally approved by many Medical Insurance company's, so these little pills can be quite expensive. Thankfully, one of my 2 drug plans will cover it up to 80%, but I still have to pay about $70 per month for my 20% cost/share. Ask your doctor about Gabapentin or Lyrica as a possible choice - I had much less side effects (but there WERE still some annoying effects, like short term memory loss, difficulty finding rarely used words, etc. But no rashes, sleeplessness, bad attitudes, and so on.

I also take Effexor to help with the depression, and it seems to work fine with me - I have not killed anyone yet LOL.

I"m also on MSN or Skype. Email me if you want my contact details.


Regards,
__________________

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I've had MP since spring 1997, but was misdiagnosed as a psychological problem until seeing a Neurologist who properly diagnosed the condition. Until last year, was on 2400Mg Gabapentin (Neurontin) per day, with a side dish of Effexor and and Risperdal to round up my daily intake. Strong Pain Attacks has resulted in severe Reflux and lower trach muscle herniation. I am now taking Lyrica at a much lower dose than the Gabapentin, however still have no pain control over "breakthroughs".

Last edited by Curious; 01-05-2009 at 06:43 PM. Reason: Per NT Guidelines Re links
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