Member
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Join Date: Feb 2007
Posts: 606
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Member
Join Date: Feb 2007
Posts: 606
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Welcome.
It seems triggers vary a lot from one sufferer to another and MominpainRSD has given a pretty good overview. For me very few things hurt much when they happen but the next day or two days later my hand gets very bad. I seem to experience a lot of the immediate effects in my stomach.
I've found ghinko biloba extremely helpful but you might want to clear this with your doc first. I take 120 mg in the morning and 60 mg at bedtime after building up to this for some time. Avoid stress and any painful stimuli like lights and noise (odors). Warm water seems to help a lot though it helps me only if I keep it down to about an hour per day. Epsom salts baths might help. Triggers can be anything and seem to change regularly so keeping ahead of them is a job. For me sodium nitrite even in relatively small quantities would set me off. This is a preservative in all processed meats so was very difficult to avoid. This sensitivity almost went away for a couple years and now seems to be returning a little.
Salt intake might be an issue for some. It's difficult for me to keep my salt levels in a narrow range which the condition seems to demand. For me high blood pressure seems to be a result of the pain rather than a cause but this is something to consider. Most people consume far more salt than they need and this can cause high B/P too.
You should still have a good chance of beating this thing since you've had it less than two years and you almost had it beaten once. Don't give up. There's still life after RSD.
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