Hello!

I'll try to keep this intro brief since I've got such a long list of symptoms. I'm 35, female, mother to two little girls.

About 2.5 months ago, shortly after I weaned my youngest, I started having all sorts of disturbing symptoms (see the list). I had an eval from my FNP who saw enough to send me for an MRI. That came back fine for brain with a little disc degeneration at C5-C6. My labs were normal, including B12. My Vit D was on the low end of normal so he had me take supplements.

Background: My brother has MS. My mom, all her siblings, some cousins and my brother have celiac's. I test negative but react when I eat it so I'm gluten-free. Since these symptoms started I've been free of grain, dairy, legumes, tomoatos, most potatos (get some starch in baked goods), soy. (I feel pretty good on this diet! No more bloated tummy.)

I see a neuro on Thursday. Truth be told, I was convinced this was MS b/c of the numbness, cognitive problems, and double vision. But, the brain MRI was clear.

So, this is pretty humiliating to list all these out, but I need to get well for my kids. Any ideas?

Numbness, prickling on entire right side for a few hours. Now just comes and goes.

Unexpectedly drop things out of my right hand, occasionally left hand

Can’t open/close doors or cabinets without looking at what I’m doing

Bump into, sideswipe things (not while driving, just walking)

Can’t feel the back of my head, always itchy

Sometimes the inside of my head, right under my scalp, feels inflamed

Couldn’t feel my left ear canal to insert the earplugs during MRI

Skin from ears to forehead is slightly numb; skin down to the middle of my back is slightly numb

Cheeks sometimes tingle

Tip of nose is slightly numb

Upper lip is slightly numb, hangs a little

Lower lip is slightly numb

Drool a little out of the corners of my mouth

Can’t evenly curl my tongue

Slur words sometimes

Slouch to the right, hard to get adjusted in my chair. Whole right side feels weak.

Head cocks to the right

Really weak neck when I’m looking up

Itchy spot on my left clavicle bone

Feels like eyes are unfocused, sometimes slightly fuzzy. Feel the need to blink.

Had double-vision in right eye on Xmas Day off and on.

See one tiny black spot with bright light around it every once in a while

Mild headaches every few weeks. Had one terrible headache in early fall.

Heart feels like it skips a beat (last 12 months). One time (past 2 weeks) my whole chest spasmed.

Gripping pain around my chest, scary to breath, felt like my heart might explode. (This was in the last month, but I can remember having this a few times in the far past.) This was not an anxiety attack. I know what those are.

Felt like my biceps were holding up heavy weight, but I was just lying in bed. Muscles were soft.

Outsides of both hands + pinkies are numb. Often numb in the middle of the night. (This has been going on since I was a teenager.)

Lots of flutters in my belly.

Mild bladder control problems, comes and goes

Constipation on the days I have trouble with my legs

Mild to moderate stabbing pain below rib cage, upper back, happens in episodes

Hips always sore

Sometimes right leg is dragging, weakness in both legs.

Tiny muscles spasms in my legs when I wake up in the morning

Very sore specific spots on the backs of my calves. (this has been going on for years). No bruising or anything on the skin.

Stub my right foot frequently.

Can’t navigate the maze of furniture in my house

Painful muscles spasms in both feet occasionally. Sometimes my toes fan out.

Restless legs

Say the wrong word all the time; the word is close but not quite, i.e. “lawn” instead of “soil” or “bread” instead of “toast.” Have trouble recalling simple words, takes a long time to get the word.

Can’t remember specific events (long time). Have to work hard and figure out hints to remember recent events (i.e. getting the car fixed).

Can’t see things that are right in front of me

Disorganized and can’t figure out how to fix it, not like me.

When I’m the passenger in the car occasionally feel like we’re driving too quickly and swerving


Thanks in advance for any help!