Hi LoneHunter21,

Welcome to kind and caring group of fellow rsders. I'm so sorry you have RSD and has gotten worse after surgery. Mine started the day following surgery, but was diagnosed for 4-5 years. There is one treatment that has been found effective for RSD and it is HBOT. Within a chamber your are given 100% oxygen, pressurized at over twice the pressure we take in 21% oxygen. Mostly they are found in hospitals and a few clinics around the country. They advance healing because the 100% oxygen spreads inside the body,especially in hard to get to areas. I'm going to go for this form of treatment in a couple of months when my Dr. gets them installed in his 2 new clinics. There are good results for many, putting them into remission.
RSD is an autonomic disorder, meaning it affects involuntary organs. Thus, we have increased sweating. We have high blood pressure -sympathetic nervous system, and low blood pressure-para sympathetic nervous system. Skin temperature is effective, fluctuating from hot to cold to hot rapidly.. I have both burning hands and feet and ice cold to the bone hands and feet. Actually I have full body, generalized. I had a lot of massage therapy and pt for over a year for frozen shoulder, then moved to other shoulder more massage therapy and pt Got full range of motion on both arms and shoulders, thru both forms of therapy. I just thought it was something that followed breast surgery for some women. NO RSD So be aware of your others limbs and of many symptoms in other limbs.

I'm so sorry you have this. Please READ READ READ as much as you can, There is a vast amount of experience here, but remember everyone reacts different to various treatments and meds. So be careful in making decisions, and make sure your dr. has experience is the area he is working on.

Do you have a support group on your town or nearby. You can find the RSDS organization and type in your area code and they will tell you the closest location with a phone number of the group leader. They have wonderful presentations by Drs. Pharmacists,, etc. Also can ask arouond for Drs. ETC

Epson Salt Baths can be relaxing, but not too hot. Swimming in 86 degree water or warmer, but me mobile and helped from my feet being crippled. I have one hand partially crippled, but can cut my own food, so it works pretty good. Even warm bath water and working toes hands etc are very helpful.

Please let us know how to continue to do? I'm so sorry you are dealing with this, but and any time you can write us, and we'll be there for you. Take care, Loretta Jewell