Actually, it sounds like you may have either neuropathy or myopathy (or both), which can be consequences of cleiac disease/gluten sensitivity.

At the celiac forum here, we have some of the leading lay experts on the subject in the world, including JCCglutenfree (Cara), who has created The Gluten File, surely one of the msot comprehensive databses on teh subject ever compiled.

I hope you have doctors who are at least aware of the spectrum of gluten disorders--at least by going through The Gluten File, you'll have access to papers and studies to bring to doubting physicians.