Hi Rosie,
We live in the U.S. Sarah was diagnosed four years ago this month and is now 17. Overall, she does very well considering that she has RSD. This recent 3-month pain flare was particulary scary as it was the first time since she started hyperbarics 2 years ago that we were not able to stop her pain. I find it so amazing that once she received the right medicine (Bentyl), the pain stopped. It is so frustrating to realize that help can be so close and yet doctors cannot connect the dots.
I pray that someday very, very soon someone will find a way to help you too. Please stay strong and never stop believing that can happen.
Love,
Jeanne