I have a friend who has been on it for a long LONG time and she loves it. I know one woman who had such a bad liver reaction to it that she became seriously ill and had to be hospitalized. I know others who are in between those reactions. As for its effectiveness with reducing MG symptoms...that varies as well.

Did your neuro tell you that it takes 9-12 months to even START to see good things with it (the bad stuff will show earlier)? Why did your neuro think the CC wasn't working? You haven't been on it very long (it can take 6-9 mos at 2-3000 mg a day dosage to start to see results) and you weren't having problems on it, were you?

Good luck!

Missy