Hello jeanayre,

I posted this on your other message in the "Welcome" thread.

First of all, welcome to the Neurotalk forums. There are lots of wonderful people posting here who might be able to offer support and information.

I know little about your condition although I did just run a search. I'm not sure where to direct you exactly as there appear to be a number of different conditions that fall under the syndrome. It also appears to be exceptionally rare.

As you mentioned Peripheral Neuropathy I'm posting the url for that particular forum here at Neurotalk. That may be a start.

Peripheral Neuropathy Forum

I wish you well.

p.s. It's worth checking out the PN forum for now, but keep checking back here in case someone comes across your posts that knows more about your conditions.

NORD (National Organization for Rare Disorders) has a page regarding Paraneoplastic Neurologic Syndromes. You've probably seen that already but here is the url just in case.

Paraneoplastic Neurologic Syndromes