Missy and Erin, I'm glad to hear that you both came through your IVIG ok. I would like to know for how long the effects of having this procedure last, and do you feel almost normal, or are your MG symptoms just more manageable.
I ask this since I've only been diagnosed just a short time now, I have alot to learn. I see my neuro later this month and I am making a list of questions. I tell ya, some days I don't know how to manage. I'm afraid to go anywhere in case I have another crisis. I travel to Florida every March with my husband and friends, and I'm afraid to go. I live in Canada and I don't know if my travel insurance will cover me for a pre-existing condition if I happen to run into trouble. I',m afraid to just go out for an evening with friends, I might choke on my dinner, or worse not be able to breath. This has certainly put a damper on my lifestyle, and I feel like I'm punishing my husband. We went out New Years Eve, I didn't drink, I certainly didn't dance, I'm becoming a real stick in the mud. If you haven't noticed, I'm feeling a little sorry for myself, and I apologize. But to get back to IVIG's. Does your blood work have to be positive to warrant this procedure, my blood work was normal.