Thanks guys for posting here. It's nice to get some convo going, even if the topic is something we'd all like to forget. So EE03, post away. I will keep reading!

Kathy, I loved your idea of telling people it'slike an ice cream headache at the back of your head. That is a REALLY good description and something everyone can relate to. I was the one saying it's called the suicide headache. When I have read things, that's how it's always described and I have to say, it's also pretty accuarate. I had a REALLY bad flare on Sunday night and I did want to just die it hurt so much. I managed to get through the night and by mid-day the next day it settled down some. I think that one was a "12" on the stupid pain chart.

Who came up with numbers anyway? Most women do not think in terms of numbers and I have a hard time describing my pain with numbers. I am creatively wired and would do much better describing the pain with words, instead of numbers. Usually I do and my pain specialist always says "Oh you're so discriptive!" I am guessing she doesn't have alot of patients like me! *laughs*

Anyway, I just thought I would toss my 2c in.