I have the MS HUG, Girdling, banding, whatever they want to call it. It hurts like all get out. When in a relapse it intensifies the pain. Neurontin used to help at 3600 mg a day but it stopped working after 6 years or so.

I think we build up a tolerance against some MS medications. Then the doctor can always prescribe something else.

It is worse when I lay down. It is right around the bra area. Even my blanket hurts to touch it. I, too, can pinpoint exactly where the origin is located on my spine, by touch.

I use the microwave heat pack to take the edge off of it. Sometimes I feel my ribs are going to crack from the tight feeling, or is it a feeling?.. or a real spasm that is really happening? Hmm
Lady