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Old 11-30-2006, 07:38 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default stuff

Well of all the letters I fired off to editors during election week, this little comment made it into this week's U.S. News and World Report

1 of 1 DOCUMENT
Copyright 2006 U.S. News & World Report
All Rights Reserved
U.S. News & World Report

November 27, 2006 Monday

Campaigns for a Cure

Parkinson's disease patient Michael J. Fox is uncomfortable and suffering,
but he is not a desperate patient as described by Lerner in his interview. Fox
never fails to call this illness a blessing and his experiences, as a result,
enrichment to his life.

PAULA WITTEKIND
Florida State Parkinson Action Network Coordinator
Parkinson patient for 17 years
Rockledge, Fla.

With bad formatting, it looks almost as long as the heading and signature...lol

Im a national yapper now; good time for a study to come out saying women naturally talk much more than men.


Oh and a point was made- don't call us desperate patients and describe us as pitiable.

So Houston, we have a problem.....everywhere you look. No one is going to save you....we are the hope. Will you think about tracking one treatment in the wonderful database we are launching that took us five years to get with lots of help from good people. NOw it's perfect but must stay updated. Think about it - just one treatment - and you don't have to enter it.

Much communication works. BUt you have to have the knowkedge to have anything to talk about or make them look at it from our view.Then the real feelings come out - like the two aforementioned.......oops slip of the tongue - tell that to Mel Gibson.

Thanks for reading the ramble.
__________________
paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 11-30-2006 at 07:43 PM.
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