Quote:
Originally Posted by Pauliana
Hi Everyone!
 
Fell and lightly broke my ankle with a severe sprain 
and before I knew ii I had RSD.. I think while I was
still in the cast.. I was having rolling cramps while I
was in the cast, numb, burining feet etc..They
took the cast off and said everything was normal
except "It's JUST a sprain!" By my next appointment
my pain continued to get worse.. Flames, Spasms
and lots of swelling..The ortho took one look and
said "I can't help you!" He then referred me to
a Pain Management Doctor..He knew what I had
and put me on Neurontin and Baclofen,thank
heavens..
Anyway I had my first Lumbar Sympathetic
block on 1-9-09 and it was a bad experience..
No caring on their part and lots of fear on
my part since I'd never experienced anything
similar in my life.. It didn't work, if fact my
pain was maginified the next day.. I plan
to tell them at my next appointment, NEVER
AGAIN.. I plan to go the medication route
at least, for now, until something more
effective comes along..
My question is.. What has helped you the most?
What has been the least helpful treatment?
Thank you for your help.. 
Pauliana |
Welcome Pauliana,
I'm sure being on an RSD forum was probably something you could have never dreamed of. I was shocked when my brother, a doc said "has anyone mentioned that you might have RSD?" Then I told him "yes" and they are sending me to a nuerologist. That was 20 years ago this July! My RSD sarted from a right shoulder injury. Then I had surgery and conscequently the shoulder repair caused spread. The RSD is now full body. I have been through three series of 10 each stelate ganglion blocks, an upper thorasic radiofrequency sympathectomy, and every medicine one could think of. I was recomended for a stimulator for all four extremities, but decided against it days before my surgery. My treatment is now, RSD diet, suppliments, antioxidants, (grapeseed included), juicing, yoga, meditation and Hyperbaric Oxygen Therapy.
This protocol works for me now. I think everyone eventually finds what works for them and makes the best of this situation. I have learned to pace myself and make changes in my lifestyle that allow me to live with the least amount of pain possible.
I'm sorry that you have to be here, but you will find a great group of supportive caring friends here. I wish you all the best. Ask away if you have any questions. I'm sure there will be lots of other support and advise.
Love Diana