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Old 12-01-2006, 08:36 AM
codabugg codabugg is offline
New Member
 
Join Date: Nov 2006
Posts: 4
15 yr Member
codabugg codabugg is offline
New Member
 
Join Date: Nov 2006
Posts: 4
15 yr Member
Default Thanks for the welcome and advice

Thanks everyone for the welcome and advice.

As for my B-12 tests: The first one was in early July and the level was the lower end of normal - 380. I was then placed on weekly injections for 6 weeks, then monthly for 6 months. After about 3 months of B-12 injections, I convinced my primary doc to do a follow-up test. That one was 10 days after a monthly injection and the level was over 1300 - I can't find my lab results, but I think it was something like 1330.

The only other notable results from the first battery of testing was a very low positive ANA screen. This also concerns me as my family has various autoimmune disorders - mother has Sjogren's and RA...I have a cousin with Lupus. My primary only ordered a Lupus panel (which was negative), so I'm not sure what the ANA positive is. It could be as simple as the fact that I had mono when I was in high school.

MRIs - I haven't had any luck in getting the neuro to order a follow-up on the c-spine. When I went in to see him before Thanksgiving, I asked him about the possibility of MS (I forgot to mention before that I also have cognitive issues and almost constant spasms in my middle back muscles, along with various muscle twitches all over the body). Anyway, he doesn't think it would be MS, as I had a normal brain MRI a year ago when another neuro was trying to find a way to treat my tremor (which I've had forever and has gotten worse over the past couple of years). He said he'll order another brain MRI in a few months. As for the hand/arm issues, he keeps saying it is just because of the muscle spasms which are a result of the surgery.

Now, he's referring me to an infectious disease specialist for further testing...how scary is that? My appointment is next Tuesday and I am anxious to get it over with! I wish I could convince someone to go ahead and order the MRI's before the end of the year. I've already paid my max out of pocket, so everything is covered at 100% right now! Starting in January, I have a $300 deductible, then a 10% copay.
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