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Old 01-13-2009, 11:40 PM
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
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I'm also confused - as there is no "law" that in order to be diagnosed (dx) you need to have those criteria. If you read Cherie's earlier post about misdiagnosis - you will see that everyone has had other things done in order to be dx. For me, it was the neuro's exam and a positive MRI.

Personally - if you know that you would continue with the meds when dx, then I would let the doctor know that you don't want to stop and wait.

Was the MRI done with and without contrast? Have you had other testing done? Spinal tap? Blood work to rule out other things? (Like Lyme disease, etc.)

As for the "odd sensations" you describe - well, I have gotten those before I've ended up in a big, bad flare. The first time - before I was dx - I had this happen and thought nothing of it - until it started getting much worse.

Good luck and keep us posted!

~Keri
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