Quote:
Originally Posted by RedPenguins
I'm also confused - as there is no "law" that in order to be diagnosed (dx) you need to have those criteria. If you read Cherie's earlier post about misdiagnosis - you will see that everyone has had other things done in order to be dx. For me, it was the neuro's exam and a positive MRI.
Personally - if you know that you would continue with the meds when dx, then I would let the doctor know that you don't want to stop and wait.
Was the MRI done with and without contrast? Have you had other testing done? Spinal tap? Blood work to rule out other things? (Like Lyme disease, etc.)
As for the "odd sensations" you describe - well, I have gotten those before I've ended up in a big, bad flare. The first time - before I was dx - I had this happen and thought nothing of it - until it started getting much worse.
Good luck and keep us posted!
~Keri
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Hi Keri,
I'll have to find that post you mentioned. It sounds interesting.
However, as I understand it, according to the McDonald Criteria for MS diagnosis, there must be dissemination in space (different areas of the brain or spinal cord) as well as time (episodes at least a month apart). This is what the National MS Society says:
In order to make a diagnosis of MS, the physician must:
"Find evidence of damage in at least two separate areas of the central nervous system (CNS), which includes the brain, spinal cord and optic nerves AND Find evidence that the damage occurred at least one month apart AND Rule out all other possible diagnoses"
I've had a clear spinal tap, and clear blood work. I guess it's time for me to go back and see what the doc says this time. I'm ready to go back on the Avonex the moment he says the word... I still have a supply in my fridge.
(Oh, I forgot to mention that I've had a clear Evoked Potential test and both of my MRIs have been with and without contrast.)