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Old 01-14-2009, 04:55 AM
distoweb distoweb is offline
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Join Date: Jan 2009
Posts: 3
15 yr Member
distoweb distoweb is offline
New Member
 
Join Date: Jan 2009
Posts: 3
15 yr Member
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Great Carol.
Would you please tell me/us if you suffer DYT1+ gene generalized dystonia? I suffer this and I d love to know if it works. I am very happy for your results. It will give a lot of hope to many of us !!



Quote:
Originally Posted by Carol~*~ View Post
I had DBS surgery last December (2007). Since DBS surgery is extremely invasive, the doctors will want you to try medications first. There are about 10-15 different ones (i tried about 6 of them....some are similar enough that if one of them didn't work, ones like them won't either). The reason for different trials of meds is 1) the insurance won't usually cover the surgery unless other avenues have been exhausted, and 2) sometimes people do very well on medications for several years. The recovery time: I had my surgery 12/19/07, was out of the hospital on 12/21/07 and was ready to return to work in a month. Amazing huh?! I was amazed at how quickly the recovery was. I was told it takes 4-8 months for all the internal swelling to go down but it doesn't interfere with normal tasks after about a week or two. If you have any further questions, feel free to ask. Carol~*~
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