Thank you Cherie. This is exactly what I was struggling to get across - you are much more eloquant than I.
To sum up my history:
March/April 2008 - SX: tingling fingers, ocular migranes. Went to first neuro. Had brain MRI w/ and w/o contrast. Came back with 30+ lesions, many of which had MS characteristics. Doc said I likely had MS, but needed more tests to confirm. Unfortunately at this time, I had to change docs bc my insurance changed. Saw someone new, he sent me for a spine MRI (w/ and w/o contrast) and a LP. Both turned up clear. Lots of blood work too - all clear. He put me on Avonex at that time. Let me note that this doctor and his office were very, very unprofessional. There were lots of reasons for me to move my case to the area's MS specialist, other than simply wanting expert care of course.
July 2008: Finally got in to see Dr. Edward Fox (specialist). He looked at all my records and did an full history and neuro exam. He also sent me in for an EVP, which came back clear. At this point, he thought that it would be best for me to get off the DMDs to see if we could see any progression and get a definitive diagnosis. I took my last shot in July.
August 2008 -New brain and spine MRI - no progression. Dr. Fox is monitoring me to see if I have any new symptoms or lesions on my next MRI, scheduled in March 2009.
January 2009 - SX: odd lightheaded, dizzy feelings in split second doses. These may not even be MS related, but I'm making an apointment just in case. He may want to move my MRI up.
Thank you all so much for your concern. I really appreciate everyone so much!