Quote:
Originally Posted by wordgirl
I can't believe that I haven't joined this forum before today. I've had RSD for seven months -- since June 12th. I had ankle surgery and woke up with EXTREME BURNING pain.  While I'm sorry to hear that anyone else has this terrible disease, I'm so glad that everyone is here. I've had two failed nerve blocks, and I won't have any more. I've done months of physical therapy to no avail. The whole bottom of my right foot is numb, except for the burning, stabbing, electrical shooting pain combined with bone crushing pain and ice running through my foot. Gosh, RSD sucks. Faith in the Lord is truly the only thing that keeps me sane. Well, faith in Jesus and lots of Neurontin! hehehe I take 7200 mg of Neurontin, plus Vicodin, for the nerve pain. I also take Cymbalta for depression. I've just started Topomax since I still have considerable pain. For me, the best thing that's worked is Neurontin even though I have side effects like poor concentration and memory loss. I'm home on long-term disability through my now former employer, and I'm waiting to hear about SSDI (I should hear by March).
I hope your battle with RSD ends with you victorious! I've been reading the threads for two hours, much to my husband's dismay. I can't wait to read more!
Wordgirl -- Word Up! |
Welcome to the group. I just joined last week and have found EVERYONE extremely helpfull and easily willing to interject and help. In a pleasantly strange way, I feel very at home on this list. Finally, I can relate with people who have already been there, done that. I am looking forward to all that I have to learn!
The GABA-pentene meds didn't work for me; felt more stupid than I already am. Prayer is a good thing: have lots of callouses on my knees too! After gauging where I am at compared to others, I do feel a little guilty in that I did do reasonably well once starting stellate blocks at 6 weeks post-op. They probably are not the long term solution for me though, as my sympathetic symptoms are returning again, so #5 is around the corner I think. The RSD did kinda ruin me, I was a health care provider until this happened last April. Scared the heck out me me knowing what was coming down the road.