--at the Cornell Weill Center for Peripheral Neuropathy in New York City; the first was the only one of many hundreds of tests to show that something was actually wrong with my small, unmyelianted fibers that subsume pain and temperature sensation. I've had others as they follow my progress and "healing"--my acute onset, body-wide burning neuropathy was an unusual presentation, so Cornell follows me for research purposed as well.

Do you mean that your insurance won't approve a skin biopsy, or the facility you're going to won't?

There is a newer skin biopsy procedure that IS still considered somewhat experimental that can show demyelination:

http://brain.oxfordjournals.org/cgi/...ull/128/5/1168

Still, it may depend on your symptoms. The normal nerve conduction studies you mention imply there is nothing grossly wrong with your larger myelinated nerves, which may provoke some of the reluctance--but a skin biopsy to examine your small-fibers should be something you can get.

Where are you being treated?