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FaithS · 01-15-2009, 11:17 AM

Deb --

Sounds like you're doing a lot of what I'm doing. My site reactions/pain have been so bad, that I've come up with my own site rotation and frequency schedule. Shared Solutions can't recommend it, because it's not their protocol, but I plan to speak with my MS Specialist about it next week.

Injections in any site, other than my abdomen, ache for 3 days, like a tetanus shot. I just am not willing to hurt that much. So, I inject only in my abdomen, and only 4 days per week, because I don't want to invite lypo-atrophy.

I sincerely hope that my doc allows me to continue on Copaxone, doing it my way. I believe that it is likely working. I had a UTI last month. In the past, those have always triggered a major flare, even when I've caught and treated them early. This time, it did not.

I did not like any of the other med options that she gave me at my last visit. Most were research studies, that involved the possibility of being on a placebo, which I am not willing to risk. I think that one involved IV's, which I don't do well with; my veins are hard to find.

Again, best wishes.

Please let us know how it goes.

~ Faith