Yep...we could be related. Started back of leg, went to arms, other leg, sometimes head. Lots of yuks and giggles with this.

But what I could advise you is to get a skin biopsy which will tell you if there is something going on with small fibers. Also if you are getting inadequate pain control, it is worth finding a neuro who specializes in this, and they can help you find the right meds. There are 50 or so of em out there, and sometimes it is a cocktail that works. If you live in a major city, you can find a neuro that specializes in this....I am NY, and there are folks who specialize, or should I say subspecialize in this.