Originally Posted by AlexTA

Hi, I know it is long, but I am desperate so please read. I am a fourteen year old girl who for over the past two years has experienced extremely severe muscle spasm in both shoulders. This all first started when I subluxed my left shoulder and it shifted out of place and into my back. I went to a&e and they strapped it up and made me physio appointment, I had pyhsio for 3 months and there was no improvement. Then one night I was moving my arm and it subluxed except every time I put it back in it just fell out again. So I went up a&e and thy tried for hours and couldn't get it to hold. The next morning they tried under anesthetic and when I woke up it subluxed again.A few days later my shoulder went into a rapid, severe spasm where my shoulder subluxed, then went back in,then subluxed and so forth. About a month later, I had a nerve block put in and when I woke up from my mid arm downwards my arm was paralysed, the doctores didn't know why and it is still like it today. I then spent six months in four hospitals having had done, botox, a nerve block, and intense physio and occupational therapy. Then, in Januaray last year my right arm got poulled back and my right arm subluxed and straight away started the severe spasm. No doctors know what to do, I don't see any doctors anymore and I am left like this. This spasm are excrutiationg, I barely sleep, and my shoulders are affecting everyone around me. I have tried several drugs at the moment I am on, gabapentin, baclofen and codiene. If anyone has had anything similar or knows of any doctors who may be able to help in the us or england please reply. I have been told that I most probably have rsd so if anyone has been treated by a rsd specialist, in Florida or Georgia (especially), and has contacts information please reply.

Thank you