Kandra, big question ....
Is there any way at all you can make an appointment in the neuro dept. of a university hospital? Even if this would mean some travel, if possible, it could mean so much to your health.

I was diagnosed with epilepsy in 1990 and, like you, went through so many different medications, so much trouble, and I went slowly but steadily down hill. I saw different neuros and thought I was getting the best possible care.

In 2005, an MRI sent me to a huge university hospital (which I dreaded) and WOW, I received great treatment.... the very best epilepsy treatment available.

No matter what is causing your epilepsy they can help you. I hope this will work for you.