Quote:
Originally Posted by LizaJane
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.
Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)
After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!
Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.
And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.
It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
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New to Neuro Talk (Dec 2008)..Inspiring to read Your "PN improvement description and your own success with it.
I'm wondering if the Supplements approach would reduce my Major Symptom..Numbness..NO Pain involved now,formerly Cervical (neck)Pain for first 5months..heavy numbness in Feet,Legs,Left Arm,Hands,Left Face, progressing...
Puts my PN in perspective when I read and consider what people are having to deal with...including Pain.
PN Physically Caused 1.5yrs ago by repetitive,Tugging Work..ie Non-diabetic,Non-disease non-Meds.,Diagnosed as Idiopathic PN..and left to get on with it (National Health Service UK)..oh,nearly forgot..was prescribed Anti-depressants....now stopped (because of side effects)
now..left with all this numbness, really bad Balance (and Fatigue from ME/CFS since childhood)...particularly exhausted at the moment......
but it is Numbness that is the real problem..unable to function normally..or work (Musician).
Can't find any info on this "Physically caused" PN..hoping the Supplements might be the way to go, first..
thanks for your Post....hope all is going well for you and that the Symptoms are still on the run......!!
Ray