I am so sorry! I was so hoping you would be able to find out something. I felt that when he (doctor) posted on the Sjogren's forum that he would really help someone. But I'm wondering if after seeing a whole boatload of people..he realized he had more than he bargained for with no real answers. After all these years with Neurological Sjogren's I still don't have a real way to stop it. It is at this point (in time)unstoppable. With the methotrexate, I slowed mine down and that is all. It is once again progressing. The eyes are no longer responding to Restasis.

I don't know how he could if he really was an expert, resist your case. You have so many classic symptoms as well as a biopsy that could be compared to a new one. What a disappointment he was.

Thanks for being brave enough to post this.

Billye