Thread: mylogram
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Old 01-18-2009, 10:31 AM
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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I've never had a Mylogram so I can't help you on that unfortunately however I do agree with what MomInPainRSD said about trying to avoid having a needle injected into an area that is suspected to have RSD!

I have had one nerve block done and my Pain Management Doctor injected directly into my leg that has RSD which you should NEVER do unless you absolutely have to! Unfortunately, my Doctor didn't know that at the time and went ahead with the procedure and I developed some pretty serious complications! I was left wheelchair bound for 13 months and everytime I tried to stand up, I would just fall to the ground as my legs would give out in front of me - I had lost total co-ordination in my legs!!! It was only when I had the nerve block and developed the complications that my mum found an article on the internet stating that you should NEVER inject directly into any limb that has RSD unless it is absolutely neccasary (ie, for life saving treatment) as research has proven that it can make things a lot worse!! My Doctor wont do any more nerve blocks now and we have also informed doctors about what happened to me so that they are aware and hopefully, no one else will have to go through what I did as it was REALLY horrible!!

IF you have to have this procedure done, I would definitely speak to your Neurologist and make sure he knows exactly what RSD is and also ask him if he is going to take any precations and what exactly the procedure involves. Most doctors when having to inject into a limb that has RSD will use a lot of anaesthetic and will use a really fine needle to try and help combat any spreading.

I hope I didn't scare you by what happened to me with the nerve block - that was never my intentions, I just wanted to let you know what has happened to me so that you are aware of the situation and know to be wary. I understand your fear of spreading and I am ALWAYS scared now when I have to have any injection (even in my limbs that don't have RSD)!!

I wish you the best of luck and I know you will make the right decision as you know your body better than anyone else. Please keep us all updated and I am thinking about you!
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