I've never heard of your unfortunate malady, so looked it up.
http://en.wikipedia.org/wiki/Erythromelalgia
Are you able to wear socks and shoes? Such a strange disease!
Hoping you are able to get some good info and support here at NeuroTalk.
Praying for you to "stay on track". *hands Lost_Ox a flashlight so she can find her way outta the tunnel*

