Quote:
Originally Posted by loretta jewell
Hi Ali,
Thanks for the excellent precautionary personal experience. You are always so informative and willing to share all that you have been thru, including the sad loss of your grandpa. I'm always thinking of you on the other side of the pond.
We have one daughter, almost 30 now. We were married 12 years before she was born. Her name is Laura. She is medically knowledgeable and has done a lot of research on RSd, especially after she did a desposition of RSD (court reporter) We are close and she and her husband help us a lot. They just moved in with us two months ago, coming back from a year in Chicago. We live in Arizona now.
I love the way you share information, but never push one way or another regarding treatment or medication. We certainly are all different as to reactions to treatment and meds, yet all suffer in so many of the same ways.
I'm especially hurt you have this at such a young age. Your maturity speaks for itself. Take care and love to your Mom, Loretta
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Thank you so much Loretta for your kind words, they mean a lot to me
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I'm SO glad that I am able to help you even if it is just in a small way, it is pretty hard trying to open up to people at times but I always think in the back of my mind that by opening up to people, I am telling them what worked for me and what doesn't and I am hopefully warning them about the complications that I suffered from so that they are aware and know to speak to their doctors about it.
I've learnt so much about RSD since I was diagnosed and always try to research about it as much as possible, like we all do ... I figure that without research, you aren't going to know anything at all. It's hard and scary at times but I would sooner know what to expect then not to.
I want to be a Psychologist when I am older so i'm glad that I am able to help you all, even if it is just in a small way. I feel that forums like this one have helped me a lot and I think they paid a big part of me wanting to become a Psychologist. I am taking my Options this year which is basically where you pick what subjects you want to do in the last 2 years of school - everyone has said that I would be a good Psychologist and it really helps me!!
I'm SO glad that you have a supportive daughter - it helps a lot having someone that understands what we are going through somewhat and try to help us. I don't know what I would do without my mum; she has helped me through a lot of the really tough times and I think I would have probably given in before now if it wasn't for her!!
Thanks again for your kind words, I really appreciate them and if you ever want someone to talk to, please know that I am here for you!