Quote:
Originally Posted by Jalee
Mine has changed since diagnosis. At first, it affected my eyes, but I had an attack of ON in the right, then left eye. Vision would get blurry until I cooled off.
Later, it didn't bother by eyes, but my legs, instead. My legs would become shaky and weak.
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Interesting. For me it was the weakness/numbness for the first several years that this was a problem, and now it is my eyes (too). Glad to hear that it
can change though. Thanks!
Quote:
Originally Posted by TheSleeper
Cherie, I haven`t taken a shower that most people would call warm in almost 5 years, my wife wonders how I can stand the cool temperature of the water. Any kind of heat messes me up. Hot dish water, sitting near the wood burner, opening the stove to get stuff out.
I even sleep with out covers most of the time. Never needed or had air conditioning in the house until this. No real vision problems but my legs and strength just disappear with heat.
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I know my heat problem has fluctuated over the years, and even during a season. I might have no other symptoms (not in an attack), but I can do poorly with heat for weeks, then have very little problem for a long while.
Like I said though, I don't mind turning to jello (or even losing my eyesight) so long as there is no pain. For that reason I will stay in a hot shower or sit in front of a fire to warm up, rather than ache with spasticity from the cold. So far the heat doesn't completely incapacitate me, but if it did, I wouldn't like that!
Quote:
Originally Posted by braingonebad
One of the speakers advised to use an OTC fever reducer, your choice, whenever you might have an increase in body temp. The theory was, if the med would keep the temp down due to illness, it should do the same if you're doing a little exercise or whatever.
I'm sure drinking plenty of fluids - good and cold - would help more if it's hot outside. But the whole Advil before shopping thing does seem to help me. I have less fatigue and can finish what has to be done.
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Now that is a very interesting approach!!
I am going to try an Advil before I do physical exercise next time, to see if that works for my eyesight.
What a great idea, bgb. I'll let y'all know if it helps with that particular symtom.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.