Welcome dshue,

I'm so sorry you are going thru this difficult, horrendous disorder and to add to that, this event. My RSD also followed surgery, the next day swollen arm and then frozen shoulder. I did have stabbing pains thru my back right away, but the headaches, swollowing,choking sensation didn't come for much later. I also had spasms, jerking, and those frightening lighting bolt strikes thru my brain, that would wake me from a sound sleep and lift my head right off the pillow, very scary. The only thing that brought these sensations and violent events under control and completely stopped them was Neurotin-3200 mg for me . for 3-4 years and then switched to Lyrica for a year or so and now just this week slowly have gone off these meds with no reoccurence. I have full body RSD 12 years now. Have had every brain test imaginable after passing out for over an hour, (low blood pressure) I hope this gets under control. I know they were scary for me, usually at night while sleeping or laying down resting watching tv. I believe others have mentioned they had their symptoms while relaxing. Sorry, that is all I remember. I have not had ketamine or blocks. I wasn't diagnosed for 4-5 years. Let us know what you find out. This is a wonderful group of caring friends. Take care, Loretta Jewell