Quote:
Originally Posted by Brian
Hi, i am wondering what are they doing to try to find the cause of your problems ? the progresion & severity of symptoms can depend on if they can find the culprit or not, in the first 6 months of my symptoms i was on 150 mg amitriptyline at night 25 mg in the mornings plus 300 mg x 2 day of slow release Tramadol just to make life bearible, i got lucky and found this forum which in turn made me find a good neuro that found the cause of my nerve damage, it is very important to find a neuro that specializes in neuropathy, at least your got more of a chance in finding the cause, hopefully.
Brian  |
Wow
than my 25mg is just a candy.
Actually I have the best neuro in the Netherlands; there is one hospital specialized in SFN and accidentally it is the hospital I visit. In Academic hospitals here it's normal that real specialists are supervising the specialists that are in education (the 'students' are only studying for neuro, they are still real doctors, not that you think that a girl of 18 treats me
) Two of that educating specialists are specialized in SFN and last visit I was offered to speak to one of them the next time. That's quite special; in 'normal' cases/with average diseases you have to stay with your studying doctor and that's it.
I was tested on many things, I still have to take the English protocol to check if really everything is tested but I think so, so I guess in my case it really will be an idiopathic SFN. And one day the progression will stop, hopefully.