Quote:
Originally Posted by mrsD
I'd direct you to this site, which is excellent..
Your symptoms sound like Guillaine Barré syndrome. This is brought on by vaccines, or viral illnesses.
I am tending to think your problem has to do with some viral problem. Something you had, that was reactivated.
Viruses do reactivate when you are low in immune status.
Taking some zinc daily may help. I don't know what you have over there, but zinc monomethionine is the easiest to tolerate.
Viruses and vaccines are notorious triggers for some neuro problems. Since you don't show obvious pathology on testing, viruses remain an option.
|
Thank you for your Post......Yes I remember Hummingbirds.....thanks for the Link, Site seems so much bigger, more info, now..got to go through it.....
My ME/CFS and the constant Mental/Physical fatigue (not many aches etc) began "before" I first started school, and has just continued, was on the lower end of the Scale initially....worsened the more effort was made, found necessary, as I grew up, got older.........no help from Docs here......
Couple of years back, the, then, latest "Genetic" info caught my eye, began thinking about where I fit in to the new 7 different varieties of ME/CFS, Research findings......your Viral possibility was suggested to me before and a search on that and Guillain Barre, read through online after your Post, kind of surprised me as to just how many Viral causes may be linked with ME/CFS.......I've sourced a couple of suppliers of Zinc Methionine online....and still thinking re Viral...
My current thoughts on the PN is......more MRI Scan Testing on the Spine, pronto, as the limb numbness symptoms and fatigue/balance, is getting much worse.....the MRI Testing Done only on my neck has always struck me as Minimal and it's been suggested in a helpful Post that a problem could be "anywhere" on the Spine....which is what I suspected....and now want checked
Doc has been unhelpful up to now re. more MRI work...but I need to get him on board somehow....I want to arrange a full spine Scan, which I would pay for...(NHS (UK) would take best part of a year to complete the necessary sequence) and I want to know asap, one way or another if there's Compression, impingement or whatever, before trying to move on...Doc has been very unhelpful about me doing this...which seems strange when the Cause is "unknown" and only minimal MRI Testing has been done......
thank you for these and any other thoughts and suggestions...all welcome.
Particularly as these Symptoms are worsening....
Ray