Originally Posted by chamade

AMIT: It started suddenly in march, 2007.

Hope: The CPMC is the California Pacific Medical Center in Pacific Heights. They have a neuro there who specializes in inflammatory peripheral neuropathies and is a big shot (wrote CIDP treatment guidelines etc.). So far I haven't had much luck with him because no test is showing anything. Next I will ask him to do a skin biopsy - he seemed resistant about it last time. This neuro (Dr. Katz) also works at the Stanford hospital, so you might run into him.
I would recommend going to the CPMC if you can, because they run tests the same day, at least they did for me (MRI and EMG/NCV).

Last I saw the UCSF neuro was a year ago and they suspected small fiber neuropathy, but wanted to do a lumbar puncture. I chickened out and never went to the follow up appointment, which was a mistake in retrospect. I guess I was just hoping the neuropathy would go away, as it seemed to be lessening at the time.
When I have my next UCSF appointment I will have them do the puncture if they still think it's necessary and whatever other tests they want to do.

Stay in touch, maybe we help each other if either of us finds something out about the diagnosis, since our problems are so similar.
Good luck with Stanford, let us know how it goes.