Hi Jan,
So glad you've found someone you feel you can trust, and who trusts you.
You have way too many serious health issues to be blown off, but you are right; just because it doesn't have a name yet doesn't mean it doesn't exist.
I hope this guy figures it out once and for all, and most importantly, that they can treat it.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.