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Old 01-24-2009, 07:54 PM
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi Kandra,
I know the surgery and all the detail seems like a lot but take my word it was well worth it in the long run I used to have an average of 300 sz. a yr. this past yr. I had 114 sz. and a few of them were just aura (simple partial sz.) I'm no Dr. but take my word those white spots your Dr. saw could be scar tissue that's what they found on my Right temporal lobe and that was the cause of my epilepsy. I don't like the idea that your Dr. told you to cut back on the water and that you should drink beverages with electrolytes
it's the electrolytes that can trigger sz. for a person I found that out the hard way when I used to drink diet soda and I found that the nutra sweet caused more electrical activity in the brain which caused sz. for me. I've found drinking cranberry juice and taking calcium with vitamin D a big help. You also might want to try taking vitamin B12. When I was on tegretol I got kidney stones 2 times and it was no fun. A few yrs. ago I took topamax and was on it for about 1 month and had to go off the drug because it caused me to have many more sz. I had 23 sz. in just one month which is sky high for me. I found topamax wasn't that strong of a drug. You might want to look into taking mysoline and diamox like I take. Diamox is a diuretec which helps get rid of the extra fluids in a persons system that can cause sz. and Mysoline has been around for many yrs. this drug breaks down into phenobarbital. I've found these 2 drugs the biggests help for me. Here's wishing you well and May God Bless You!

Sue
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