Quote:
Originally Posted by Porkette
Hi Kandra,
I know the surgery and all the detail seems like a lot but take my word it was well worth it in the long run I used to have an average of 300 sz. a yr. this past yr. I had 114 sz. and a few of them were just aura (simple partial sz.) I'm no Dr. but take my word those white spots your Dr. saw could be scar tissue that's what they found on my Right temporal lobe and that was the cause of my epilepsy. I don't like the idea that your Dr. told you to cut back on the water and that you should drink beverages with electrolytes
it's the electrolytes that can trigger sz. for a person I found that out the hard way when I used to drink diet soda and I found that the nutra sweet caused more electrical activity in the brain which caused sz. for me. I've found drinking cranberry juice and taking calcium with vitamin D a big help. You also might want to try taking vitamin B12. When I was on tegretol I got kidney stones 2 times and it was no fun. A few yrs. ago I took topamax and was on it for about 1 month and had to go off the drug because it caused me to have many more sz. I had 23 sz. in just one month which is sky high for me. I found topamax wasn't that strong of a drug. You might want to look into taking mysoline and diamox like I take. Diamox is a diuretec which helps get rid of the extra fluids in a persons system that can cause sz. and Mysoline has been around for many yrs. this drug breaks down into phenobarbital. I've found these 2 drugs the biggests help for me. Here's wishing you well and May God Bless You!
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Hi Sue,
Evidently, from what she said, the small amount of white spots were in the white matter...and could be caused by HTN etc....I could swear the woman said "punctal" but I can't find anything for that on Google other than the punctal plugs they put in people with dry eyes (which I have..lol!) I've been a bit freaked all day thinking it's possible those are tiny little strokes or something, sigh. First she said they kind of were then backed right off of it.
It's interesting that tegretol caused kidney stones for you because Topamax is fairly well known to do just that
I have a history of kidney stones too...ergh. Actually it was my suggestion to try the Topamax as I knew she wouldnt go for the Mysoline as I'm still weaning off Klonopin. I haven't started the Topamax yet because of other information someone sent to me.
I don't like things with Splenda due to the GI effects it has on me...and she knows I'm on a diet and I HOPE what she was thinking was maybe Propel. I have tried it once...it was ok. She knew I wasn't going to drink anything with calories in it. I know she was a little concerned about my borderline low sodium, which Tegretol causes...that's why she didn't want me to drink only water...to further dilute me down, so to speak.
I had seen before you mentioning B12 and did start that a few days ago.
I had been taking Tums (a cheap calcium!) and Vit. D but had slacked off...but did resume it again a couple days ago.
I think I mentioned she wasn't wild about any surgery because she didn't feel my sz were from one focus. In the future maybe a VNS if things don't get under control. Then of course any med etc. have to be careful with due to the Coumadin.
I'm just tired of this...really am. I appreciate so much you and everyone else here...thank you!!