Hi lostmary,

I'm think we written to each other maybe once before. I have full body rsd 12 years. It started in left arm/shoulder. Through pt, got full use of my shoulder (range of motion) back moved to other shoulder, then more pt and got full range of motion again in that shoulder. With a water skiing injury to left hand, finger froze up and finally got a rsd diagnosis 4-5 years late. didn't get the full use of fingers back, but good enough to dress myself , cut my foot etc. About a year or so ago, my toes started curling, but the other direction off the floor upwards. My Dr. Neuro. gave my dailey exercises to do. and believe me I did them dailey warm bath water. warm swimming pool . After a few months , my toes were back touching the ground. I constantly check them, by running a piece of paper under the toes to see if there is any space. space is not good. Both feet touch the ground and I will do eveything to keep it that way. I really want to stay mobile and out of wheelchair if at all possible. I continue to use squeeze softie balls for my hands too. I even stretch and make sure my shoulder blades don't start to turn in. Ask you pt or Dr. what exercises to do, because if you don't exercise and stretch, they will just keep curling until you can't walk. I find a warm bath in the morning with stretching and massaging your feet is really good for them, wearing warm socks in the wintertime. A good massage therapist or reflexology really does wonders. Please don't give up. My Dr. has already told me I won't get off pain meds. But I'm determined to not go higher. I was actually going a little lower until one of our best friends' son died from a car accident. Was in a flare for a few months and added some meds and now off of them. Our daughters were close and we traveled together, annual coast trips, annual snow ski trips,
After our daughter was born, they were to raise her is something happened to my husband and me. Our hearts still hurt, they are coming to visit this summer.

Please don't give up on your toes. If you need any more suggestions just ask, I see my Dr. in a couple weeks.Take care, Loretta I just hate it when Drs. try to get rid of us, because they are interested enough to do research and step up to really make a difference. My Dr. is always wanting to read more and research more. Is already involved with trials. getting HBOT in his new clinics. I'm so excited to try it. Soft hugs Loretta