MrsD, as a matter of fact, I have hyperpigmentation on my neck, forearms, chin and low back. The scleroderma specialist I saw in 2005 told me it was because of my morphea. I've had it since about 1978 though so not sure on that one. I'll look into this. THANKS!

dahlek, They ran for TPO antibodies. That was the Microsmal Antibodies that came back at <3.0 (value low: <5.0) so I read that as negative. Interesting to note, my father has a multinodular goiter as well as hypothyroid, and at least 4 of my cousins on dad's side are also hypo. The cousin who just passed with AML also had a large mass on his thyroid that was "ignored" because the leukemia was too aggressive. When I went to the neuro for the consult and he told me I had some kind of Autonomic Peripheral Nervous System Disorder, and order all the tests, I told him I was a little a little shocked and that "I thought you were just going to tell me it was my thyroid" and that's when he ordered the TPO. I was really hoping to get a script for Synthroid and could start felling better!

At Cleveland Clinic they have a thing called "My Chart" where the docs can post test results. It's a secured network that you log into. My neuro won't post to it, but I think I'm going to get in touch with my fantastic primary and ask if he can post those biopsy results since she forgot to send them with everything else and "I'd really hate to waste more paper and postage". My mother taught me to "kill 'em with kindness" so I was 'very grateful' with his nurse, thanking her for helping me understand. I just don't want to fake it again if I don't have to!

I did also ask her about starting with steroids, and she told me they don't do that for my type of SFN... I already knew better but didn't want to point it out!

I won't give up on getting to the bottom of this, I was just very frustrated the other night. I've been battling this since somewhere around 2001-2002. A four year misdiagnosis and all the tests that went along with it... I've even had a Heart Cath - at age 39 - looking to pulmonary hypertension as a cause of my fatigue! And now I'm getting, we know you have SFN (which explains tons of the symptoms) but not what's causing it, and all the lab results don't really tell much of anything! I'm still frustrated. I cleaned my kitchen and bath GOOD Friday, and could hardly get out of bed Saturday morning... I can't live like this.