Olsen, it sounds like your husband has been taking CoQ10 on his own, not as a part of the earlier studies. Many others have as well, after reading about the positive results reported on a phase II trial, which ended in 2003 - concluding a larger placebo controlled study should be done next (and it is ... in 2009. CoQ10 can be purchased as a food supplement -- if you can afford the high doses suggested in the earlier study. At that time I think it would have cost about $200 a month The company that produced the CoQ10 for the phase II study even advertised their product on the Web to PWP, as the "purest" form available, and warned that what you buy at Walmart was not the same. Indeed there are no standards for food supplements, and you might mot be getting what you pay for.
But the real point is there are likely thousands of PWP who were and are taking CoQ10 - who would not qualify for this new study. But wouldn't the data on their experiences, such as your husband's, be valuable, if it could be collected and analyzed?